Evan Moss is not your average 7-year-old boy. For starters, his recent Alexandria, Va., book signing drew 600 people from as far away as Pennsylvania and New Jersey. But he's not your average child celebrity either. His book isn't a tell-all about the movie industry or fodder for the next reality television show.
Evan's book, "My Seizure Dog
," was written as part of his application for a service dog that could help to save his life by alerting his parents before he has his next life-threatening seizure. Almost on a whim, Evan's parents decided to self-publish the book with the hopes of offsetting some of the $13,000 that Evan would need to obtain such a dog.
Evan has a rare genetic disease called tuberous sclerosis complex, which causes benign tumors to grow in his brain that in turn cause epileptic seizures. By the time he was 4 years old, Evan was having 300 to 400 seizures a month. He had brain surgery to remove the brain tumors, but the seizures returned two years later and this time they were the kind that required immediate medication and sometimes emergency medical response.
His parents have pretty much slept with one eye-open for Evan's entire life. A seizure dog that could detect Evan's seizures before he has them could alert his parents that a seizure was imminent and help them guide Evan to a safe place before the seizure strikes.
And thanks to sales of "My Seizure Dog," Evan will get his dog. The Washington Post recently reported that Evan has made about $26,000 to date via sales of his book. Evan's dog will be selected and trained by 4 Paws for Ability (Fund for Evan Moss, 253 Dayton Ave., Xenia, Ohio 45385) but he’s already making plans to write “My Seizure Dog 2” about life with his new best friend.