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The boy who could die if he falls asleep
A young British boy has an incredibly unusual genetic disorder called Ondine’s Curse, which means that if he falls asleep, he’ll stop breathing.
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It is amazing, regardless of the ailment when a person is given mere weeks to live & blows that outta the water!
http://www.spectramedi.com
Because these parents are in the Britain, they don't pay a penny for this (treatment + staff checking on the kid every night), how much would this cost in the US? $180,000/year?
You did not have to travel to Great Britain to find this disorder. There are plenty in the United States with some surviving over 30yrs.
cant they put him on a ventilator come bed time??
www.being-anon.int.tc